Yesterday was another Papworth day, arranged to discuss more fully the potential treatments I have to face. However, true to Papworth's style, it didn't turn out that way. Ann and I were ushered in to Dr Yang, a young specialist in radiotherapy of the lung, but at the outset she said she did not know a lot about melanoma, as she usually treated primary carcinomas of the lung. However, it was a general service offered to any growth in the lungs included secondaries from other sites, so she would be quite happy to treat mine. She then went into detail of the doses I would have, the potential side effects, how long it would take etc., almost like a rerun of the surgical appointment I had had. Then she said I could have that instead of surgery if I wished, but the outcomes weren't much different. At least, that's what I think she concluded, though it was hard to be certain. What she could not elaborate on was the prognostic outcome from either. If I have the surgery, or the radiotherapy, would it add many weeks/months or even a year to my life expectancy? No one seems to know, or to commit themselves to even a vague guess. I suspect they are too concerned with being sued these days, in case their guess is wildly out.
People sue so readily, I expect some might sue because they suddenly have an extra year to live but have spent all their money; or a relative might sue because the life was shorter than predicted, so they want compensation for the extra time of grieving or a missed holiday. Everyone is so lentiginous these days; or am I just being over cynical?
Anyway, to try and find someone sensible, I have managed to make an appointment with a McMillan nurse for next week. Hopefully we can at least discuss our concerns and worries to a disinterested person who is not responsible for providing actual management care.
My stick has arrived |
Also this week, we received the largest box Amazon have yet sent. It was not heavy, and we couldn't work out what could be in it. It turned out to be a stick Ann had sent for me. It was lying across the bottom of the box, with a mountain of paper stuffed over it. I get a little weak and wobbly on my pins come the evening, so it is to help me get out of my chair, and steady myself. It is a beautiful stick, in polished beech with a chrome silver handle and a pleasure to use - more like a fashion accessory than an invalid aid. Indeed, I took it for a twirl, making out I was Fred Astaire doing a dance routine, touching my imagined top hot, and slinging it under my arm, nearly knocking ornaments off the mantlepiece as I did so. But it is a great aid, and a pleasure to use.
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